We Found a Kidney Donor!

Kobie Chaney is my 11 year old brother. Kobie was diagnosed with Nephrotic Syndrome in 2002. He has battled yearly relapses with this disease. As the years went on Kobie’s struggles with Nephrotic Syndrome had progressively worsened & were not responding to his regular treatments. In the summer of 2009 Kobie had a kidney biopsy that showed he was suffering from FSGS(Focal segmental glomerulosclerosis) which is end stage renal disease & that his kidneys were functioning at 20%. In September 2009 Kobie has a kidney removed & a Peritoneal catheter placed & started to have nightly Peritoneal dialysis at home. Dialysis was going as planned & family members were being tested as possible kidney donors.

In February of this year Kobie started to complain of shortness of breath & trouble breathing & was initially diagnosed w/walking pneumonia, but upon further testing he was found to have Congestive Heart Failure & Cardiomyopathy. Since this diagnosis Kobie has been hospitalized & has been in Children’s Hospital Cardiac ICU the majority of his hospital stay. There have been other reported cases of heart failure in children with kidney failure but not a case as severe as Kobie’s. During this time upon several conferences/meetings with the Cardiac, Kidney & heart failure Doctors it was determined that Kobie was a special & difficult case due to the fact that his heart failure & end stage renal disease makes it difficult to treat his heart. If Kobie’s heart didn’t start to repair itself the recommendation from the doctors were that he would need to be put on the transplant list for a double heart & kidney transplant & would never be able to come home unless a transplant was received. There was a suggestion from one Kidney doctor to place a Hemodialysis catheter & to see if that maybe that would help the heart to begin to function better. He had the catheter placed & began treatment & with much prayer from many people Kobie’s heart function improved.

The doctors determined that now Kobie could received a kidney transplant & the heart failure will repair itself. 

AND WE FOUND A DONOR!!!

Thank you Voncille! God Bless You!

"With a lot of carful thought and consideration, I have decided to donate one of my kidneys to save the life of my 11 year old nephew Kobie Chaney, of Cincinnati Ohio."